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The care Cahalan receives at NYU is better than what she received previously. The neurologists are more thorough with their examinations. In this chapter, we see excerpts of texts in different typefaces to indicate different states of mind and different moments in time. The “normal” font is Cahalan writing from the future where she is recovered. The italics are spurts of recollection she had in real time during her madness, of which there is a swift and accelerated escalation in symptoms. There is a third, smaller font, too. This font represents video footage of Cahalan in her room at NYU.
Cahalan’s initial diagnosis at NYU is Capgras syndrome, a psychiatric disorder also known as “imposter syndrome,” in which a person afflicted with the syndrome believes friends, family and other people close to the person afflicted to be identical impostors to the actual people they know.
This is the first chapter where the reader encounters neurologist Dr. Russo, who thinks Cahalan has postictal psychosis, or bipolar disorder. After one examination, Russo prescribes Cahalan antipsychotics. Dr. Siegel is a general practitioner who charms Cahalan’s mother, Rhona. He says to Rhona, “‘We will figure this out. Susannah will be fine.’ My mother clung to these words like a life raft and nicknamed the doctor ‘Bugsy’—her own gangster doctor” (82).
Dr. Khan, a psychiatrist, believes Cahalan has dissociative identity disorder or bipolar I, in part because Dr. Khan perceives how Cahalan looks to be a “visual picture to match the psychological one” and because Cahalan “was within the age range for psychotic breaks, which tend to occur in the late teens or early twenties, but also frequently happen later in life for women” (83).
Thus far, Cahalan’s doctors do not believe her self-diagnosis. They perform some investigations before ultimately misdiagnosing and mistreating her. They do ask more penetrating questions than previous doctors and are slower to draw conclusions. The doctors, and in turn Cahalan’s family, also use more precise language for her symptomology. Cahalan’s paranoid hallucinations continue and intensify, increasing the chances she will be moved from the floor for epileptics to the psychiatric ward.
Here, we meet Dr. Arslan, a psychopharmacologist. He performs the most comprehensive intake process thus far in Cahalan’s journey, interviewing those around her and digging deep into her past. Arslan thinks Cahalan has schizoaffective disorder and postictal psychosis (PIP), the symptoms including “delusions, hallucinations, and disorganized speech, and negative symptoms, such as mutism or general apathy” (87), and psychotic behavior following a cluster of seizures. These symptoms should last around 10 days.
Cahalan can no longer handle watching television. She believes everyone on TV is gossiping about her. She also thinks that everyone knows about her illness and that her reputation is ruined. Further, she is sure that her father is a murderer and has killed Giselle, among others. In an excerpt in italics, Cahalan writes what she hallucinates hearing and seeing on the local news--a broadcast about her mental illness and her father’s arrest for murder.
Cahalan’s treatment of staff, along with escape attempts, have put her on the brink of being forcibly removed from the ward. If she does not control her behavior or find a way to make the symptoms subside, she will be placed in the psychiatric ward.
Dr. Friedman, an internist, is startled by Cahalan’s blood pressure, which is exceptionally high. He believes this spike in pressure indicates a stroke or bleeding in her brain.
A glimmer of the old version of Cahalan comes out while her father is visiting. She hugs him and tells him to try to stay positive. Her father is overwhelmed by this moment, sharing it with the rest of the close family, except for James, who has been intentionally left in the dark about his sister’s illness. The family decides to rally behind her and commit to solving her medical mystery.
In this chapter, Cahalan provides more insight into her father’s character. We learn more about his emotional state before and during her illness. Her father kept a daily journal of Cahalan’s medical developments and his own feelings on the matter. Cahalan notes the emotional impact her illness had on him: “After my second escape attempt, he wrote a heartbreaking entry about praying that God would take him instead of me” (95).
For a short time, Cahalan’s psychosis recedes. While her mental health temporarily improves, her physical health wanes. She transfers to a private, peaceful hospital room overlooking the East River and FDR Drive. Cahalan begins crying out for help periodically, weak as she is. She believes staying in the hospital is killing her.
The doctors propose a spinal tap in the next stage of investigation, which triggers flashbacks for her parents, who still vividly recollect the pain James endured as an infant when he had to get a spinal tap to rule out meningitis. Although they are afraid, they give the go-ahead for Cahalan’s spinal tap.
Many nurses have now grown to love and care for Cahalan. Cahalan begins to regress mentally and age physically. She shows no signs of psychosis, but she does show signs of increased compulsion. Her cousin, Hannah, comes to visit. Hannah is the first person who has visited outside of her parents and boyfriend. Where she was once wild and violent, Cahalan is now eerily catatonic.
A stream of family and friends visit Cahalan. She is aware that while the visits do her some good, they can also be detrimental: “it would often leave me depleted and unable to communicate for hours afterward, as if I had devoted all my energy to acting normal” (111).
Cahalan is no longer able to read or complete complex tasks. Daily routine and visits from Stephen bring her joy and help to a degree. Cahalan begins journaling.
While the reader might anticipate that Cahalan finds the care she needs at NYU, the doctors consistently misdiagnose and mistreat her. This time, the doctors’ mistakes aren’t due to their disinterest in her or her recovery, but because of a lack of known information on her illness. While she seems to improve psychologically by the end of this section, we see that her physical health is failing her. Cahalan has fallen quickly from the normal, young professional into a hopeless, sick person; a comparison Cahalan develops in her opening section.
Additionally, Cahalan’s diagnosis of Capgras Syndrome can be read as metaphor for the form the text itself takes in this section, with Cahalan’s “impostor” self (as brought on her by illness) having space on the page alongside Cahalan’s writings post-recovery.
Again, Cahalan points out that she is not the only victim of her illness: her mother, father, and Stephen all suffer along with her. Her father even prays that God will take him instead of her; the subtext here is that watching his daughter suffer is even more difficult than enduring suffering himself. The strength of her family is tested during this time, more so than before she was hospitalized. They all experience weakness and vulnerability as they spend time with a degenerating Cahalan. Cahalan shows signs of improvement via performing tasks such as walking. While the family is happy that she is less psychotic, they are panicked that she will die shortly. That Cahalan’s mother and father agree to the spinal tap, even though they’re aware of the pain it causes, highlights their desperation for answers and a possible cure.
Cahalan’s family develops a routine that involves each of them taking shifts visiting Cahalan in her room and entering information into a journal documenting her treatments, examinations, and symptoms. Their journaling sets the stage for Cahalan’s own journaling, which likely becomes the foundation for “Brain on Fire.” Not only are we, as readers, privy to the ins and outs of Cahalan’s developing illness, we see the moment when Cahalan first began to put her thoughts and feelings about her journey down in writing. Later, she’ll see that these writings lack self-awareness, which resembles her need to ignore her health problems at the beginning of the story.
In this set of chapters, Cahalan interjects multiple sections in italics, representing memories her future self has reconstructed over the course of writing this text. Cahalan also includes multiple excerpts in a smaller, different font, representing video footage of her in the hospital room. Cahalan adds excerpts from the actual reports various doctors completed over the course of treatment at NYU. The placement of these various forms of text lend a multifaceted quality to the tone of the narrative, support the authenticity of Cahalan’s voice, and reveal just how many doctors and family members work working for Cahalan’s benefit during this time. Just as Cahalan feels overwhelmed by her many visitors and by her condition, she adds these sections to overwhelm the reader.
As the doctors become more detailed in their examinations and slower to conclude what the actual issue with Cahalan might be, the closer the team gets to solving her problem.
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